Comeback 4.0

[ColinJ]

I've spent 4 years unable to walk or function, the new meds are a revolution for me, but as you say, getting that workable balance is tricky at times

It's a bit worrying that it took the doctors 4 years to sort your meds out, unless this is something very new that they couldn't prescribe for you before now!

Anyway, keep on keeping on. I have fought my way back to a relatively good level of fitness over the past few years. It was very hard at first but hopefully your new meds will allow you to make similar progress.

 

[Disabledcyclist40]

It's a bit worrying that it took the doctors 4 years to sort your meds out, unless this is something very new that they couldn't prescribe for you before now!

Anyway, keep on keeping on. I have fought my way back to a relatively good level of fitness over the past few years. It was very hard at first but hopefully your new meds will allow you to make similar progress.

Its taken that long for the specialists to stop and listen as opposed to just pumping me full of painkillers, there's every chance I'll be permanently in a wheelchair as I f et older, but the treatment can hold it off for a good few years, it's more difficult as I've got more than one "disability" also, feeling sprightly this evening again however

 

[ColinJ]

Its taken that long for the specialists to stop and listen as opposed to just pumping me full of painkillers, there's every chance I'll be permanently in a wheelchair as I f et older, but the treatment can hold it off for a good few years, it's more difficult as I've got more than one "disability" also, feeling sprightly this evening again however

If you haven't seen them, watch 4 episodes of 'Doctor in the House' HERE. The first episode of this series only has 6 days left to view it, the others are available for 13, 20 and 27 days. I found it quite inspiring to see what a doctor could achieve when he DID start listening to what patients said and tried to help them reduce or eliminate their dependence on meds. Obviously, the NHS does not have unlimited resources and some problems can't be fixed, but it is great to see some people overcoming problems that they thought they were stuck with. Hopefully, your future might not be quite as bad as you fear it might be.

 

[Disabledcyclist40]

Thanks Colin

**update **

Old meds this am as per agreement, no feeling in legs, new meds as of 11am and I'm heading out now to see what I can achieve, no goals, no pressure, just let's see how we go

 

[Disabledcyclist40]

Back to the car after 6060 steps, totally shocked at how well I've done today as I didn't expect this result at all.

Time to upgrade the tracker

Chance of getting back on the bike 2%, +1% change.

 

[Alan O]

Chance of getting back on the bike 2%, +1% change.

Chance of that being pessimistic: 99%

 

[Disabledcyclist40]

Chance of that being pessimistic: 99%

After the 4 years of HELL I've been though, I want to keep myself and others around me grounded and realistic (he says looking at a madone on ebay), after day one I had to stop the car going home and vomited at the side if the road, this morning I had no feeling in my legs, so couldn't even stand for myself.

Make no mistake, there's a huge chance of me falling flat on my face, both literally (again) and metaphorically.

But I'm fighting, I need to be able to recover and learn where and how I can push myself before my body shuts down, because it's always on the edge of that happening.

The support shown here is more than I could ever have asked for, I just hope I can repay the faith others have in me.

 

[Milkfloat]

Will you be rebooting your blog? It certainly inspired many people.

 

[Disabledcyclist40]

No plans to blog currently, who knows what the future might bring.

 

[Disabledcyclist40]

What a difference a few experimental drugs can make to someone's lives.

 

[Disabledcyclist40]

The lust to grab a bike and go and suffer is real.

But as I type this, I've woken up with a heavy chest cold, just 12 days into a new hope,

Now, let's see what happens, in the past a cold would turn into a chest infection 99% of the time and that would turn into pneumonia far too often, the lack of immune system was as bad as the illnesses that are attacking my body.

So while today certainly isn't positive, I'm actually excited to see how my new, stronger body deals with this minor illness, if it stays as a cold and I manage to get over it fairly quickly then that's another MASSIVE bit of progress, if it turns into anything worse, then I fear all this might have been for nothing.

Wish me luck, I'm going to need it.

 

[Ganymede]

I've just started reading this thread, sorry about your cold! I'm not sure where you live but if you're anywhere near me this will have coincided with some horrid rainy weather so at least you aren't getting wet.

I hope you've got lots to read or watch while you recover. Good luck!

 

[Disabledcyclist40]

I've just started reading this thread, sorry about your cold! I'm not sure where you live but if you're anywhere near me this will have coincided with some horrid rainy weather so at least you aren't getting wet.

I hope you've got lots to read or watch while you recover. Good luck!

The weather here isn't great, generally once it gets wet I get ill, now it's just a case of not getting iller

 

[Rickshaw Phil]

Best wishes for getting over the cold. I hope it doesn't set you back.

 

[fossyant]

PS stay away from Chinarello's this time.