GWS ColinJ.. DVT/Pulmonary Embolism

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D

Deleted member 1258

Guest
Honestly Typhon, it was pretty damn terrifying how quietly this sneaked up on me.

It sounds stupid, but I was totally convinced that I just had a nasty chest infection and that I would get over it without needing to see a doctor.

It took a sleepless night curled up in the foetal position and fighting for every breath with my heart doing 150+ bpm to finally convince me that I needed help.

Seeing the CT scan showing the main clot in my lungs scared me. I am going to try and get hold of copies of my scans at the end of this and I will post them as a warning to others to listen to the advice issued for long-haul flights etc.

I did the same thing, when I first had angina in 2008 I thought I had a chest infection, I only went to the doctor when It didn't clear up and I suddenly realized I only had the pain when I pushed the heart rate, sprinting away from a standstill climbing hard etc, when I did go I was half expecting to just be given antibiotics to clear it up.
Its nice to hear you're making progress Colin, the trip to the cafe sounds like a step in the right direction. Once you've recovered you'll be leaving me behind on the hills on the forum rides then?^_^
 

ColinJ

Puzzle game procrastinator!
I did the same thing, when I first had angina in 2008 I thought I had a chest infection, I only went to the doctor when It didn't clear up and I suddenly realized I only had the pain when I pushed the heart rate, sprinting away from a standstill climbing hard etc, when I did go I was half expecting to just be given antibiotics to clear it up.
Its nice to hear you're making progress Colin, the trip to the cafe sounds like a step in the right direction. Once you've recovered you'll be leaving me behind on the hills on the forum rides then?^_^
I was pretty surprised to find out that you'd had heart problems Dave! If I can recover as well from my health problems as you have from yours, then I will be very pleased.

As for leaving riders behind on climbs ... It would be nice not to be at the back on my forum rides, but I doubt that I'll ever be as quick uphill as some CC members. I might be able to cause a few problems riding into headwinds though - skinny little climbers tend not to be so good with them! :thumbsup:
 
D

Deleted member 1258

Guest
I was pretty surprised to find out that you'd had heart problems Dave! If I can recover as well from my health problems as you have from yours, then I will be very pleased.

As for leaving riders behind on climbs ... It would be nice not to be at the back on my forum rides, but I doubt that I'll ever be as quick uphill as some CC members. I might be able to cause a few problems riding into headwinds though - skinny little climbers tend not to be so good with them! :thumbsup:

I was lucky, I had and still have an active lifestyle, manual work and lots of cycling, that meant we got it early, on the stress test they did just after the diagnosis the angina was kicking in at around 80-85% effort, if I had had a sedentary lifestyle I doubt I would even know about the silting up arteries today, the first I would have known about it would be years in the future when I did something a bit more energetic than usual and keeled over with a heart attack, the arteries would have been even more silted up. Until the heart starts complaining, the angina, theres very few symptoms to tell you something is wrong, theres a subtle down turn in physical and mental condition that most people would just put down to aging and thats about it. Six or seven years before the angina I had stopped doing the Cov Road Club's fast veterans ride, fifty-sixty miles, maybe more, at an average between sixteen and eighteen miles per hour that could rise to nineteen , I had been a regular for years, doing two or three Sunday mornings a month but I stopped enjoying it and it had become hard work, I suspect the arteries had already started to silt up even then.
 

longers

Legendary Member
Now that I know I can get to a cafe, if you fancy riding over for a coffee some time let me know and we can meet up and exchange books! It would be nice to see you again. (If you are too busy, I'll post the book.)

I wasn't angling for the book back but a brew sounds good, I'll do my best to get over as it's been a while!
I'll also rustle up Margrave of the Marshes.

In the meantime = carry on getting better.
 

ColinJ

Puzzle game procrastinator!
I wasn't angling for the book back but a brew sounds good, I'll do my best to get over as it's been a while!
I'll also rustle up Margrave of the Marshes.

In the meantime = carry on getting better.
I found the book again, and sure enough, it had found its way to the bottom of a pile of others. I am reading the rest of it now so I should have finished it soon.
I might be over your way soon Colin, did someone mention cafe??? :biggrin:
Let me know when that is Gaz, and I will hobble out to meet you! :thumbsup:
 

ColinJ

Puzzle game procrastinator!
Aaaargh - I made the mistake of going online and searching for information on DVT & pulmonary embolism! The trouble is, the people (or surviving family/friends) of people who had seriously bad outcomes tend to shout louder than the thousands who made full recoveries...

I read some stories that I now wish I hadn't read and they have damaged my peace of mind. I'm trying to remind myself that I already knew that things could still go wrong for me, but it keeps popping back into my head every time I get breathless or feel the pressure of the clots in my chest, which is several times an hour!

One thing that I have decided is that if the doctors recommend that I stay on Warfarin for life, I am going to get one of the new 'INR' measuring machines so I can do my own blood tests on a regular basis, and try and regulate my clotting levels using diet alone. Foods containing high levels of vitamin k increase clotting and there are others that reduce it so in theory, clotting control ought to be possible without drugs, and it so happens that I really like the foods in question and they are very nutritious.

Anyway, I've got my b-in-law here for a few days and that is nice. He nipped out to the shops yesterday and came back with some yummy salmon steaks, the kind of thing I love but can't afford to buy very often for myself - hmmm! :thumbsup:

There is a break in the rain here today so I think it is time for another cafe trip, this time with my guest. I came to the conclusion that I need to be walking a bit more now, because sitting around too much is probably a major cause of my original clots and I don't want to form more!
 
D

Deleted member 1258

Guest
Aaaargh - I made the mistake of going online and searching for information on DVT & pulmonary embolism! The trouble is, the people (or surviving family/friends) of people who had seriously bad outcomes tend to shout louder than the thousands who made full recoveries...

I read some stories that I now wish I hadn't read and they have damaged my peace of mind. I'm trying to remind myself that I already knew that things could still go wrong for me, but it keeps popping back into my head every time I get breathless or feel the pressure of the clots in my chest, which is several times an hour!

One thing that I have decided is that if the doctors recommend that I stay on Warfarin for life, I am going to get one of the new 'INR' measuring machines so I can do my own blood tests on a regular basis, and try and regulate my clotting levels using diet alone. Foods containing high levels of vitamin k increase clotting and there are others that reduce it so in theory, clotting control ought to be possible without drugs, and it so happens that I really like the foods in question and they are very nutritious.

Anyway, I've got my b-in-law here for a few days and that is nice. He nipped out to the shops yesterday and came back with some yummy salmon steaks, the kind of thing I love but can't afford to buy very often for myself - hmmm! :thumbsup:

There is a break in the rain here today so I think it is time for another cafe trip, this time with my guest. I came to the conclusion that I need to be walking a bit more now, because sitting around too much is probably a major cause of my original clots and I don't want to form more!


Its a major mistake looking up your illness on the web I've done it myself, from what I'm reading on here you're doing OK, you just need to keep rolling along.
 
OP
OP
potsy

potsy

Rambler
Location
My Armchair
Colin, can you rename your album to 'Colinj's ever shrinking' now please :thumbsup:
 

ColinJ

Puzzle game procrastinator!
Colin, can you rename your album to 'Colinj's ever shrinking' now please :thumbsup:
Ha ha! My guest has been buying lots of yummy supplies for us the past few days so I haven't lost any more weight since the last report, but he is off on Thursday and I'll be back to more mundane food like porridge and salad (in separate meals!).
 

ColinJ

Puzzle game procrastinator!
Ha ha! My guest has been buying lots of yummy supplies for us the past few days so I haven't lost any more weight since the last report, but he is off on Thursday and I'll be back to more mundane food like porridge and salad (in separate meals!).
He spotted 200g Galaxy bars for £1.19 in the local Co-op last night! He bought one 'classic' bar and one of the ones with caramel filling inside each piece of chocolate, so it was 1,000 Calories worth of chocolate each last night! Oh, and toasted cheese sandwiches for brekkie today instead of my usual healthy porridge ... :blush:

Just before b-in-law left today, he told me that he thought I'd improved in the 5 days that he was here. I think so too! I walked into town with him today on the way to the station. That was as far as I could manage but I at least I got another cafe visit in and ... I did my own fruit and veg shopping at the local market on the way back. It has been 2 months since I last managed to do that!

The couple who run the veg stall said that they had been very worried about me. I've been a good customer of theirs for about 10 years and the last time they saw me, I could hardly breathe and was deathly pale. They know about my cycling and so were pretty shocked to hear how sudden and serious this illness is/has been.

I shopped for myself, but was still too weak to carry the bag home - a friend did that for me.

Baby steps, but I'm getting there ...

************************************************

Now then - I think I've finally worked out where my clotting problem came from ... (It only just occurred to me yesterday. How could I spend 9 days in hospital wondering about the cause, and not think of this ...? D'Oh! :wacko:)

Background: A gradual reduction in my cycling from 2006 to 2012. From 5,000+ miles of cycling a year, 4 or 5 rides a week to 1,000 - 2,000 miles a year, 1 ride every 7-10 days. Weight increase from sub-13 stone to 16 stone-plus. Alcohol intake up from 10 pints of beer a week to 25+. Excessive time spent sitting down in front of PC and TV screens.

The final trigger: My legs had got fat. Round the house, I wear baggy tracksuit bottoms. Going out, I wear trousers which last fitted me comfortably when I weighed 1.5 stone less than my peak, so they are tight around the top of my legs whenever I sit down in them.

At the end of April/early May, I had a 5 day holiday in Wales and getting there and coming back each involved a 45 minute train journey, a 2.25 hour coach journey, and a 3 hour drive. I was sitting down with my legs stationary and my overtight trousers digging in to the top of my thighs and cutting off the blood supply to my legs for about 6 hours each way.

I reckon some small DVTs could have formed in my legs then. Not enough to cause any serious leg problems at the time, but enough to start a chain of events which eventually threatened my life.

Development: So, I now had DVTs developing in my leg(s). I was unaware of this, so I carried on with my stop-go lifestyle, lots of beer, lots of sitting around with blood pooling in my legs around the nascent DVT(s).

Eventually, it was time for another hilly forum ride. I planned a spectacularly tough route, which was actually way above my fitness level.

July 15th - Otley, or bust! I was not feeling right from early on in the ride. I was struggling to ride and talk at the same time. It was hard, hard, hard and the ride half killed me. Unbeknown to me at the time - literally!

Crisis: July 19th - A 19 mile local ride exhausted me, and my breathing was becoming very poor.

July 22nd - My breathing was deteriorating rapidly but I still thought I could MTFU! The same 19 mile ride had me gasping for breath as soon as I got to the foot of the first hill. Something was very wrong.

Outcome: I collapsed a few days later. I am pretty sure that part of the DVT had broken off due to the strain of the Otley ride and moved on to my lungs Pulmonary embolism, fighting for breath, and a near-death experience including blacking out, collapsing and spending 3.5 hours unable to move on my bathroom floor!

Suggestion: The next time you travel, listen to doctors' advice about the risks of DVT! Move your legs about, get up and walk around if you can, and maybe wear support stockings during your journey. Don't end up like me ... :eek:
 

phil_hg_uk

I am not a member, I am a free man !!!!!!
Well at least you are still alive and nearly kicking colin :thumbsup:

A couple of weeks ago I got a call from someone asking me if I looked after a certain website and I thought ay up it one of them domain name hijackers, so I was a bit wary. It turns out one of my customers I have been doing business with for about 8 years had had a heart attack and died while sat at his computer a couple of weeks before.

He was a chauffeur and picked execs up from airports etc, the only way he was found was because he didnt answer the phone for a couple of days when one of the drivers rang him so they got the police to kick in his door an found him just sat there at his PC.

It is a shame because he was a nice chap and I always got in very well with him, turns out it seems he has no relatives and didnt leave a will so there is no one to sort out his affairs which is a great shame :sad:
 

ColinJ

Puzzle game procrastinator!
A couple of weeks ago I got a call from someone asking me if I looked after a certain website and I thought ay up it one of them domain name hijackers, so I was a bit wary. It turns out one of my customers I have been doing business with for about 8 years had had a heart attack and died while sat at his computer a couple of weeks before.

He was a chauffeur and picked execs up from airports etc, the only way he was found was because he didnt answer the phone for a couple of days when one of the drivers rang him so they got the police to kick in his door an found him just sat there at his PC.

It is a shame because he was a nice chap and I always got in very well with him, turns out it seems he has no relatives and didnt leave a will so there is no one to sort out his affairs which is a great shame :sad:
That is a shame! Being single, it is the kind of thing that I worry about.

When I was lying on my bathroom floor, I had a real sense of being seriously ill. I've felt ropey at times in the past, but never had that feeling before and I definitely didn't like it! I hadn't even got dressed that morning and I had visions of my worried family getting the police to break down my door, and them finding my fat, naked corpse on the floor - not good. I remember thinking that if I got through this, it was time to take better care of myself. (And to start wearing PJs again! :whistle:)

I was quite touched when the market veg sellers told me that they had been around some of the other stalls asking if anybody had seen 'the big cyclist' recently!
 
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