OWs.. may I ask how old you were when your wife died?
Reason for asking is, if my wife can't walk, shower, bath etc I have no idea how I can cope.
12 months ago I felt like Superman, now I don't
I would have been 79 but since then I feel more like 99 now.
We had a semi wet room which had a seat in the shower and I rigged up a battery powered doorbell system so that she could be left in the toilet and ring when she wanted assistance to get out. We had the bath removed to achieve this.
She could hardly walk but I developed a system of walking behind holding on to her until we reached a seat in the house.
Her specialist nurse said it was highly illegal but she would not object as it was practical.
She could sometimes use a walker with a seat but several times I had to borrow a supermarket wheel chair to get her back to the car or van. I preferred the motorhome as it had it’s own toilet if required but with a radar key we could use supermarket or other places with locked facilities for the disabled using the wheelchair
Nights were the worst tho’ as I often got very little sleep.
I could book her into a local respite centre to allow me to get away cycling and catch up on sleep but she referred to it as a hellhole and was ringing me constantly wanting to go home. It was actually a very good place of it’s kind but I could understand her dislike. It was subsidised by the local council so not too expensive and in any case the only available place.
I was only able to get a fixed 4 or 5 hours respite per week every Thursday but I could not leave the island in case of delay getting back.
Any mainland visits I had to take her with me but she had a Blue Badge which made parking easier and I had a couple of places I could leave her. My daughter in law is an experienced carer and was always available and in Glasgow her brother and wife were retired medicals so were available.
Latterly she had difficulty telling fact from fiction and she made a silly joke to a community nurse who did not bother to consult the specialist nurse but ran straight to social services and caused a considerable rumpus. I have never and never will forgive her for the trouble she caused.
Her specialist nurse became a great friend and went well beyond the normal duties. She would have had my guts for garters if she thought I had been mistreating her.
I have no idea what she said at the next staff meeting but she certainly read the riot act and killed the whole thing stone dead.
This seems to have unleashed a long tale but any info I have I am willing to share.