GWS ColinJ.. DVT/Pulmonary Embolism
- Thread starter potsy
- Start date
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ColinJ
Puzzle game procrastinator!
- Location
- Todmorden - Yorks/Lancs border
Usually 18-22 miles, with about 1,500 ft of climbing. I have a slightly tougher one in mind which I intend to have a go at soon.
Err ... no!
I'm talking more tired than I was after a 140 mile ride involving 14,000 ft of climbing, and as mushy-headed as I was after nearly dying from carbon monoxide poisoning a few years back!
dan_bo
How much does it cost to Oldham?
Err ... no!
I'm talking more tired than I was after a 140 mile ride involving 14,000 ft of climbing, and as mushy-headed as I was after nearly dying from carbon monoxide poisoning a few years back!
Worse than your average saturday morning then.
ColinJ
Puzzle game procrastinator!
- Location
- Todmorden - Yorks/Lancs border
Given that I haven't touched alcohol for 13.5 months ... yes!
dan_bo
How much does it cost to Oldham?
Given that I haven't touched alcohol for 13 months 1 week four days and seventeen hours ... yes!
Not that anyone's counting....
albion
Guru
- Location
- South Tyneside
Out of interest, what is the quality of your sleep like? And maybe you wife knows as much about that as you.A quick update'm still suffering chronic fatigue, mild nausea and fuzzy headaches rather too often for my liking. ....
Low quality night time breathing certainly compounds many a problem.
ColinJ
Puzzle game procrastinator!
- Location
- Todmorden - Yorks/Lancs border
If I had a partner, I'd probably sleep better than I do!
Judging from the state of the bed in the morning, I'd say that I am tossing and turning all night long.
Sometimes, the duvet ends up the other way round! It starts off with the cover's fasteners at my feet, but sometimes I wake in the morning with them under my chin!
On one occasion, I went to bed on the first floor, but woke up in the spare room in the attic!
On one occasion, I went to bed on the first floor, but woke up in the spare room in the attic!
You big hill wrestler you! On a serious note Colin how is the health?
ColinJ
Puzzle game procrastinator!
- Location
- Todmorden - Yorks/Lancs border
I've had a good couple of days, but the general situation is as described in my posts on the previous page of this thread (page 35).
One thing which is still a pain, is that I can't get comfortable sitting upright. I am okay for 20 minutes or so, but long periods sat still make the veins in my legs swell and ache. It isn't just the discomfort - for obvious reasons, I am wary of allowing the blood flow to stagnate and risking clotting again. Meals, travel, and working at the computer can all cause problems. I have to remind myself to get up and walk about.
I tell you what - if/when I fly again, I am going to take the airline's DVT warnings a lot more seriously! I suggest that any of you who have followed my struggles over the past 14 months might feel inclined to do so too ... To be blunt - I am one of the luckier victims of DVT/PE. About one in three people who have it as bad as me would have died of it by now, some will die in the future, and many of the survivors suffer long-term crippling pain!
ColinJ
Puzzle game procrastinator!
- Location
- Todmorden - Yorks/Lancs border
Funnily enough, I was not given the option of compression stockings in hospital. I asked one of the doctors, and she said that she didn't think it was a good idea to be wearing them while the DVT was still new, since the last thing I wanted was to be potentially squeezing more bits of clot lungwards! That made sense to me at the time.
I toyed with the idea of bringing the subject up later, but I have seen conflicting opinions on the use of stockings so I didn't bother. I also think that my legs would tend to overheat except in the winter.
Keeping legs warm enough is definitely a good idea though, because cold blood clots more easily than warm blood. I probably won't ride outdoors too much over the winter, but if I do, I will be wearing my full Roubaix tights!
The best approach for me seems to be not to stand around too much and to put my legs up on a footstool at every opportunity when I am seated. I am ok when walking or cycling, but blood seems to pool in my legs a bit if I don't keep on the move.
Davidc
Guru
- Location
- Somerset UK
I have a couple of pairs of airline compression stockings. After reading that they were good for bike riding/ running/ some sports in cold weather I tried them. I've found them good, giving me the tingling feeling I get when the weather's hot, and keeping legs and feet warm. It has to be cold though, otherwise they cause overheating, and when the temperature goes below about 5 I need thermal socks as well.
ColinJ
Puzzle game procrastinator!
- Location
- Todmorden - Yorks/Lancs border
I'll see how my legs feel when conditions get cold.
I just realised ... when I read the word 'stockings', I was thinking thigh-length, which I don't fancy. Knee-length compression socks would be a lot more acceptable to me.
ColinJ
Puzzle game procrastinator!
- Location
- Todmorden - Yorks/Lancs border
I have been taking a vitamin B complex supplement for 8 days. It is probably too early to be sure, but I have noticed a reduction in fatigue and fuzzy-headedness. I don't think it is a placebo effect because I hadn't really given much thought to the fact that I have been taking the pills.
It could just be that my clots are healing, and that I would be improving anyway without the supplements. If I end up feeling good on a long-term basis, I might stop taking the supplement to see if my symptoms return. OTOH, I might just play safe and stick with them!
Think they're more to try and prevent PTS
http://files.www.clotconnect.org/patients/resources/brochures/compressionstockinghandout-1.pdf
which if you're having some "trouble" after ~15 months, you may be experiencing, even mildly? I'd talk to your doc/consultant next time and it may be worth trying for a bit. Some people say it helps.
I had an ultrasound on Saturday to see how things were going and it was quite interesting to see the residual clot on the vein. The vein just looks like a long, fuzzy cloud from the knee down, completely different to normal, round, well-defined vein next to it. Also had a chat to the guy, he was saying that when I went in last November, I had a fairly large chunk floating/flapping around at the top of my leg, next to my groin. Thought the nurse who did that scan looked a bit worried and didn't bother scanning any more, she simply said you're not walking anywhere, get in that wheelchair.
http://files.www.clotconnect.org/patients/resources/brochures/compressionstockinghandout-1.pdf
which if you're having some "trouble" after ~15 months, you may be experiencing, even mildly? I'd talk to your doc/consultant next time and it may be worth trying for a bit. Some people say it helps.
I had an ultrasound on Saturday to see how things were going and it was quite interesting to see the residual clot on the vein. The vein just looks like a long, fuzzy cloud from the knee down, completely different to normal, round, well-defined vein next to it. Also had a chat to the guy, he was saying that when I went in last November, I had a fairly large chunk floating/flapping around at the top of my leg, next to my groin. Thought the nurse who did that scan looked a bit worried and didn't bother scanning any more, she simply said you're not walking anywhere, get in that wheelchair.
