My latest update ... It's a
lonnnnnng one so I think I'll wait until the end of December or when something significant happens before reporting again!
My INR level has stabilised at a good therapeutic level so I am able to go through to the second week in January before my next blood test. That is because my Warafarin dosage has been adjusted to compensate for the high vitamin k levels in my healthy 'greens'-rich diet. The important thing is to be consistent in what you eat and drink so the Warfarin can work properly. My advice to anyone on Warfarin is to speak to their anti-coagulation clinic and discuss the issue with them. I found that some staff at mine were fairly insistent that I should cut down on the greens, but I couldn't see the point in trying to fix one problem, only to potentially cause another by eating an unbalanced diet.
I am getting stronger. I can now walk about a mile before I have to sit down for a minute or two and I can carry 10-15 pounds of shopping in my rusksack while doing so. That is a big improvement on where I was at the start of November.
My left leg feels like there is still some clotting in it, but the swelling, discolouration and discomfort in it is probably only half what it was before.
Shortness of breath is much less of a problem. I still can't run up and down stairs or ride my bike, but I can now walk fairly briskly and cope with everyday life.
My heart is behaving itself
most of the time! A month ago, it was still doing some very alarming things - I was getting bursts of irregular rhythm, or a very fast heart beat, even when just sitting down reading. That was pretty scary!
I am no longer getting the sudden severe stabbing chest pains. As you can imagine - they were
very scary!
My personality is returning to what it was before I got ill. That may or may not be a good thing!
A close encounter with death had left me weak, timid and fairly humourless. I'm now itching to do more walking and to start cycling again. I've got my sense of humour back, and I am also now getting bad-tempered about annoying things that I was too poorly to bother about a month ago!
Now then ... the big news is that I saw my respiratory specialist yesterday. I had a good chat with him and the overall assessment was that I should feel 'cautiously optimistic'. He said that clots normally clear up in 6-8 weeks of Warfarin treatment but mine were particularly bad so he isn't surprised that my recovery is so slow. As long as I feel that I am improving, that's fine.
I am due to come off Warfarin towards the end of February. The doctor has booked me a battery of extra blood tests a couple of weeks before that to check for any signs of residual clotting to see if it is safe for me to stop taking the drug.
I asked about what the long-term effects of this illness will be on me. He told me that it wouldn't become clear until I stop making progress. At some point, my fitness will either get back to where it was pre-illness, or I will discover that I have a more permanent problem. There is a good chance that an embolism as bad as mine will have starved parts of my heart and/or lungs of oxygen to the extent that they suffered
infarction (necrosis, or tissue death!). If that is the case, my body may repair some of the damage, or some medical intervention may be possible to improve matters. We'll cross that bridge if/when we come to it!
Finally, I asked about exercise ... Is it safe to really push myself? The advice was to work as hard as I feel able to, as often as I want to, but (obviously) to back off if I start to feel ill or exhausted.
At one extreme,
Frank Vandenbroucke died of a (cocaine-induced?) pulmonary embolism; at the other, Serena Williams returned to full competitive fitness after suffering one at the end of 2010. I am hoping for the best (coming back from my illness fitter and stronger than before), but I'm aware that anything is possible. Fingers crossed!
That's all for now, folks!