Rohloff_Brompton_Rider
Formerly just_fixed
Am I bad coz I sniggered a little?See 9 Sep 2013 for what can be a typical A&E visit.
Am I bad coz I sniggered a little?See 9 Sep 2013 for what can be a typical A&E visit.
Severe asthmatic, been resuscitated twice. My asthma meds have given me Secondary Addison's disease so basically my body does not produce any/enough cortisol to stay alive (cortisol balances sodium/potassium in the blood stream, helps digest food, produces muscle, stops muscle wastage....) and I also have rare form of tracheomalacia and bronchiectasis from constant chest infections which have damaged my lungs and throat from constant coughing over the years... and then there is the pituitary adenoma... that's the worst of the conditions...
oh and I am partially paralysed from an accident 20 years ago which has left me with osteoporosis, but only in my left femur...
I'm slow, but steady, don't quit easily and don't give in easily either. It will probably kill me, but then something has to... I don't expect to survive my next major asthma attack.
I only manage that when I am having a good period - that and doing nothing else - what people don't know is that I basically go to bed after our evening meal (when on tour) and sleep for the best part of 10-12 hours and the 2nd week of our holiday required me to double my steroid dose because it was taking too much out of me (I am meant to double them when ill or under the weather...). Even at home I am in bed for 9pm when I have done nothing all day! Last year I spent 3-4 months in bed unable to do anything over the summer months, expect sleep. thankfully they gave up and put me on steroids permanently back in November last year, so I have been much better since and in the last month, I have had a major break through with my asthma meds (one of them contained dairy products which was being sprayed directly into my lungs - I'm allergic to dairy products!) I still get days where I get as far as breakfast and know that the day is not going to happen and the only thing I can sensibly do is go back to bed (anything else is physically dangerous because my coordination is usually out and I can't think straight), but they are getting fewer and further between those days and I am actually beginning to feel like I could return to work - OK probably only part-time but even considering it is something new! I haven't worked for the last 3 1/2 years. 1 year of that was on the road on tour, but since returning to the UK we have both despaired at me being able to work again, but this last month has seen such a change since getting off that darn medication with dairy in it - living in permanently anaphylactic shock does not do the body any good whatsoever! I have even signed up to college for a single class a week! I know it doesn't sound much but it is progress I have not been able to make for quite some time...And yet you still manage over 100k - off road - day after day...
If you'd said you didn't laugh, I'd have been suprised.Am I bad coz I sniggered a little?
thankfully not me - I've only gone as far as resus twice! That is more than enough for me...If you'd said you didn't laugh, I'd have been suprised.
Wonder how many on here can say they've already had one trip in the back of a hearse, from the church?
I only manage that when I am having a good period - that and doing nothing else - what people don't know is that I basically go to bed after our evening meal (when on tour) and sleep for the best part of 10-12 hours and the 2nd week of our holiday required me to double my steroid dose because it was taking too much out of me (I am meant to double them when ill or under the weather...). Even at home I am in bed for 9pm when I have done nothing all day! Last year I spent 3-4 months in bed unable to do anything over the summer months, expect sleep. thankfully they gave up and put me on steroids permanently back in November last year, so I have been much better since and in the last month, I have had a major break through with my asthma meds (one of them contained dairy products which was being sprayed directly into my lungs - I'm allergic to dairy products!) I still get days where I get as far as breakfast and know that the day is not going to happen and the only thing I can sensibly do is go back to bed (anything else is physically dangerous because my coordination is usually out and I can't think straight), but they are getting fewer and further between those days and I am actually beginning to feel like I could return to work - OK probably only part-time but even considering it is something new! I haven't worked for the last 3 1/2 years. 1 year of that was on the road on tour, but since returning to the UK we have both despaired at me being able to work again, but this last month has seen such a change since getting off that darn medication with dairy in it - living in permanently anaphylactic shock does not do the body any good whatsoever! I have even signed up to college for a single class a week! I know it doesn't sound much but it is progress I have not been able to make for quite some time...
My asthma consultant has also told me to "not stop cycling" because he does not think he can control my asthma with meds alone... so at least that is motivation to continue fighting...
Resus came to me.thankfully not me - I've only gone as far as resus twice! That is more than enough for me...
and how come from the church... surely you had to get there first?
Me mad!Humbling, nah......
It is a celebration of the human spirit in the face of adversity, against all the odds blah blah blah.
As the originator of this thread, it is just nice to know that you are not on your own and that there are people as mad as you out there on their bikes.
Vaguely!Remember this? And no offence intended or taken.
Hello All,
As per the title, are there any survivors of serious illnesses on here ?
Reason being, I'm slow and don't do big distances and would love to 'follow' others of similar ability on Strava to get and provide some encouragement for each other.
Me.
I have suffered several Sudden Cardiac Arrests (SCA's) and am among the lucky 5% to survive one. I now have an ICD (Implanted Cardioverter Defibrillator) in my chest looking after me. It has saved my life three times in the year I have had it, the last time was just under a month ago.
I still get out on my bikes but limit the rides to less than an hour and typically do about four off road miles a day in about twenty five minutes. The biggest rides I'm doing are about 11-12 miles in about an hour.
A Cardiac Arrest is different to a Heart Attack in so far as it is caused by dodgy electrics in the heart rather than blocked plumbing. Thankfully my plumbing is fine. Sometimes it is hard to get out there and anxiety, panic and general worry can play is big part.
I'd be interested in hearing from anyone who has faced or is continuing to face serious health issues and how they are getting on.