Well that's me off my bike for a while

[roadrash]

I thought chocolate was a major part of the cure for ........ errr . well......... anything really

I think this is the point where i shout HURRAY for fentanyl patches, took some getting used to , but i wouldnt like to be without them now.
hope you feel well soon.

 

[SatNavSaysStraightOn]

The first round of chocolate has been applied, sorry eaten...

 

[SatNavSaysStraightOn]

Now onto the custard... Which I managed to burn.

Given up and taken the morphine again. Don't like taking it during the day but needing it right now

 

[Deleted member 1258]

Well I've worked out why my back is so very sore at the moment. 2 of the injection sites have bruised and hurt like no-ones business. Oww.... which also means it will take at lest another 7 - 10 days to ease going by my current bruising on my arms...

I've had to cut back on the amount of walking in doing and also have had to increase my pain meds again. Yet to find a good combination though so rather gruppy and prone to tears at the moment and sadly too sore for my husband to hug me better.

I might be hitting some chocolate soon despite my diet!

Have a, very gentle, virtual hug from meand a

 

[Shut Up Legs]

How are you going, @SatNavSaysStraightOn ? Is your walking range increasing? And more importantly, what news on the recumbent trike?

 

[summerdays]

I must admit I'm intrigued to know if you have a delivery date yet?

Hopefully you have had a good nights sleep?

 

[SatNavSaysStraightOn]

Most things are stationary.
I've not seen any progress for well over about a month really.

Walking range has dropped, I was overdoing it. So I've cut it back to 30 mins walking in the morning and 20-25 in the afternoon. Distance is less because it was hurting too much to astride out that far and quickly...
Pain is much the same, sleep comes from exhaustion every 3-4 nights.
Still can't dress myself (lower half), reach my feet, put socks on... Shoes are laced so I can slide my feet into them.
I can only sit down for 2-3 minutes at a time and so on.
Obviously can't carry anything unless it is small and for in a pocket.
Walking around the house is interesting. My balance seems to be getting worse not better and I don't know why.

I took a bad fall during the week sadly, would have been a 999 call if my husband had not literally just come home and I could hear our car outside (it has a very distinctive noise).
I'm still trying to get physio. This being the latest...

The recumbent trike: I've heard nothing more yet so I'm hoping having finalised the build last week that it is now on order. I did ask Kevin if he wanted a deposit or even payment but haven't heard anything. I'm guessing if he wanted money he would have said so... So it's just a case of waiting for it to happen now. Lead time on parts was 10 working days to him, then he needed to do some work and I guess hell let me know when he wants the parts I have sent to him and when I need to get the other parts (some Rohloff specific ones) ordered and despatched to him. I wait but I'm expecting another week at least before I need to do anything... I anticipate being back in our house before it arrives.

So overall, not much happening and not much happening I think sums it up really!

 

[Sara_H]

Sorry to hear you're a bit stuck at the minute.
I remember when I was ill being incredibly frustrated that I wasn't recovering quickly enough.
Still, your trike is under way, which is absolutely fab!
Gentle virtual hugs to you

 

[SatNavSaysStraightOn]

Sorry to hear you're a bit stuck at the minute.
I remember when I was ill being incredibly frustrated that I wasn't recovering quickly enough.
Still, your trike is under way, which is absolutely fab!
Gentle virtual hugs to you

Tbh I'm scared that this is as good as I'm going to get. The paralysis hasn't improved/changed of recent (+4 weeks) and you don't need a medical degree to know the longer it doesn't improve the less likely it is going to be to improve I don't improve or get worse during the course of the day either, so it's pretty much static. I know I have regained far more use of my right leg than I had dated hoped for, bit it is still scary knowing that no progress now seems to bring made.

My next consultant's appointment is 20th March. It's going to be a long wait.

 

[vickster]

I know it's not ideal but is there a possibility of intense in-patient rehab for a few weeks, either on tne NHS or bupa

Can you pull the consultant pint,ent forwards (are you still seeing her privately? If so, given the epidural doesn't appear to have helped, I can't see she wou,d object. Talk to the secretary

 

[Pale Rider]

Tbh I'm scared that this is as good as I'm going to get. The paralysis hasn't improved/changed of recent (+4 weeks) and you don't need a medical degree to know the longer it doesn't improve the less likely it is going to be to improve I don't improve or get worse during the course of the day either, so it's pretty much static. I know I have regained far more use of my right leg than I had dated hoped for, bit it is still scary knowing that no progress now seems to bring made.

My next consultant's appointment is 20th March. It's going to be a long wait.

Your realism - and stoicism - is to be admired and will serve you well in the long term.

Unhappily, I agree that the longer things don't improve, the less likely they will.

However, my endearing mother was left almost unable to walk after an operation.

She improved a bit early on, plateaued, but has recently made noticeable progress towards improved mobility - about six months after the op.

For what it's worth, the consultant reckons the final picture won't emerge until a year has elapsed.

Fine for him to say, but the old stick is in her 80s so she hasn't got so many years to play with.

 

[Katherine]

+1 for intensive rehab with a physio and an occupational therapist. An OT should find, and teach you, how to do stuff safely and independently.
The question is when, as there might still be some more healing to do.
Meanwhile, both physio and OT would be helpful. Physio to keep muscles toned that you can't do on your own and OT for safety and independence.
Good luck with your phone calls!
You're allowed to be scared but you're not allowed to give up.
Only 3 more days till pancake day!

 

[SatNavSaysStraightOn]

Pancake day is being delayed..... we are in our landlady's home and her aga will not get hot enough to make decent pancakes (decent anything actually) - we have tried. so we are delaying it a week until our new kitchen is up and running... Her cleaner doesn't think it has ever been serviced and I think she is right - even on max you can't get it up to the black line which is 180C and getting it to red is impossible. I grew up with an aga and also a woodburning aga and they both worked much better than this one does. We will christen the new kitchen and cooker next week. It's not yet plumbed in and lemons will be cheaper again then!

Physio and OT are a problem, as is everything for anyone it seems because I can't get to them and they don't seem to want to come to me... so I just continue to lie around in bed... I have considered the but my OH has been accused of me up in the past (I had come off my mountain bike on a mtb skills course several days earlier and he had not even been on the course with me!), so I am reserving that option () for falls where I can't stop myself falling! it seems the best approach!

 

[Katherine]

Pancake day is being delayed..... we are in our landlady's home and her aga will not get hot enough to make decent pancakes (decent anything actually) - we have tried. so we are delaying it a week until our new kitchen is up and running... Her cleaner doesn't think it has ever been serviced and I think she is right - even on max you can't get it up to the black line which is 180C and getting it to red is impossible. I grew up with an aga and also a woodburning aga and they both worked much better than this one does. We will christen the new kitchen and cooker next week. It's not yet plumbed in and lemons will be cheaper again then!

Physio and OT are a problem, as is everything for anyone it seems because I can't get to them and they don't seem to want to come to me... so I just continue to lie around in bed... I have considered the but my OH has been accused of me up in the past (I had come off my mountain bike on a mtb skills course several days earlier and he had not even been on the course with me!), so I am reserving that option () for falls where I can't stop myself falling! it seems the best approach!

Well done and all to look forward to...

 

[Pale Rider]

Pancake day is being delayed..... we are in our landlady's home and her aga will not get hot enough to make decent pancakes (decent anything actually) - we have tried. so we are delaying it a week until our new kitchen is up and running... Her cleaner doesn't think it has ever been serviced and I think she is right - even on max you can't get it up to the black line which is 180C and getting it to red is impossible. I grew up with an aga and also a woodburning aga and they both worked much better than this one does. We will christen the new kitchen and cooker next week. It's not yet plumbed in and lemons will be cheaper again then!

Physio and OT are a problem, as is everything for anyone it seems because I can't get to them and they don't seem to want to come to me... so I just continue to lie around in bed... I have considered the but my OH has been accused of me up in the past (I had come off my mountain bike on a mtb skills course several days earlier and he had not even been on the course with me!), so I am reserving that option () for falls where I can't stop myself falling! it seems the best approach!

Agas with their single heat setting don't make much sense to me.

There is an awful lot of cooking you can do at 180/gas 5 or six, but some recipes call for flash heat.

We had the poor relation - a Rayburn - which I reckoned was better because you could turn it up and down a bit.