Myopericarditis

[RichT84]

Wow Alicat, I apologise I didn't realise I needed to come back every couple of hours to check if someone had replied but I will bear that in mind in future posts. Incidentally I did reply almost immediately to the first couple of posts but had a few things going on yesterday.

Thanks for the replies. UphillSlowly - I haven't been offered any cardio rehabilitation however it had crossed my mind and is something I'll raise at the next consultation to see if that is an option. I suspect as you do that it is probably for people who have had heart attacks/heart surgery.

Expresso Vecchio - great advice thanks. I'm waiting for the results of an echocardiogram that should show whether my heart function is improving and whether it has led to any scarring/further issues. I feel ok at the moment so fingers crossed it will be good. I will more than likely take your advice and pay to go private for a second opinion with hopefully someone who is a specialist in the Myopericarditis area. I think that the main problem mentally when something like this happens is the lack of confidence it gives you in your heart so having an expert in the area look over it and give a second opinion should at least provide some piece of mind.

Thanks once again for the (mostly) positive messages!!!

 

[alicat]

Wow Alicat, I apologise I didn't realise I needed to come back every couple of hours to check if someone had replied but I will bear that in mind in future posts. Incidentally I did reply almost immediately to the first couple of posts but had a few things going on yesterday.

No need to apologise but we have recently had a rash of people asking for detailed advice on a first post and then never visiting the forum again - it does get wearing and I'm sorry in turn for jumping to conclusions in your case.

 

[UphillSlowly]

Wow Alicat, I apologise I didn't realise I needed to come back every couple of hours to check if someone had replied but I will bear that in mind in future posts. Incidentally I did reply almost immediately to the first couple of posts but had a few things going on yesterday.

Thanks for the replies. UphillSlowly - I haven't been offered any cardio rehabilitation however it had crossed my mind and is something I'll raise at the next consultation to see if that is an option. I suspect as you do that it is probably for people who have had heart attacks/heart surgery.

Expresso Vecchio - great advice thanks. I'm waiting for the results of an echocardiogram that should show whether my heart function is improving and whether it has led to any scarring/further issues. I feel ok at the moment so fingers crossed it will be good. I will more than likely take your advice and pay to go private for a second opinion with hopefully someone who is a specialist in the Myopericarditis area. I think that the main problem mentally when something like this happens is the lack of confidence it gives you in your heart so having an expert in the area look over it and give a second opinion should at least provide some piece of mind.

Thanks once again for the (mostly) positive messages!!!

I think cardiac rehab also tends to offer patients psychological support. Sadly this is not routinely offered to patients who have had cardiac issues, though psychological trauma is a well recognised complication. Good luck going forward

 

[presta]

As all doctors say in answer to the common question from patients "How do I identify a good abcxyz-ologist?", the answer is 'Find a better one'.

So if someone asks you "how do I get to the railway station", presumably you tell them "by following the road to the railway station", do you?

How do you mend a puncture?
By mending the puncture.

With one exception, my experience of private healthcare is that they just tell you to go and ask the NHS. There was a cardiologist who helpfully provided a written report, but the NHS just dismissed it, telling me that one of the world's leading experts is just confused, and doesn't know what he's talking about. They then finished off by describing him as an expert in dysthymia.

 

[twentysix by twentyfive]

My experience of Pericarditis is that you need to start very easily indeed. Really short, flat rides with no or little increase in HR. So just tickle the pedals around. If your symptoms don't recur after a few of these then it's possible to take on slighly longer rides with occasional but controlled small increases in HR. If that goes well then a slight hill can be added where you will find that the control on HR might be more challenging. If still OK you can begin to increase distance and hilliness but ride within yourself. If you get to a good place then maybe you can start to put in some efforts. But be prepared to back off or stop if symptoms begin to arise again. I had 2 false starts where I thought I was getting there and had to pack it in. It took me about 2 years before I started to get back to it "properly". My consultant was a bike rider/runner which helped the understanding part. I've been free of symptoms now for over a year and a half and Just the other day the consultant has downgraded my pathway to PIFU (Patient Initiated Follow Up). So I reckon I'm cured. BTW - I'm in my 70's so my rehab was limited by restrictions due to age (my HR is more limited etc etc) but the process for a youngster shouldn't be too different.
Like you I was originally on the heart attack pathway and had an angiogram which gave the all clear. You really don't want an angiogram if it's not necessary. There's a terminal side effect.......

 

[RichT84]

Thanks for the above that's some really good advice there and as I suspected looks like it may be a long road back to what I was doing before. I've had a couple of very light rides on the turbo where I can keep an eye on my heart rate and they have gone ok with no niggles/pain and I will probably stick to this for the foreseeable. Just out of interest did your consultant help you with guidance on getting back to training or did you do it yourself with trial and error?

 

[vickster]

Thanks for the above that's some really good advice there and as I suspected looks like it may be a long road back to what I was doing before. I've had a couple of very light rides on the turbo where I can keep an eye on my heart rate and they have gone ok with no niggles/pain and I will probably stick to this for the foreseeable. Just out of interest did your consultant help you with guidance on getting back to training or did you do it yourself with trial and error?

There’s a long chat here that might have some nuggets of info
https://www.trainerroad.com/forum/t/cardiac-rehab-with-tr/52326

 

[RichT84]

Thanks Vickster, just taken a look at that and a lot of good advice in there!