All is still fine with William health wise. His Hickman line (in his chest) decided to stop bleeding back a few weeks back, which is a pain. So they (The Marsden) put him in for it to be removed last Tuesday and a "Port" to be inserted instead. Unfortunately he had a bit of a coldy type thing going on + had a spike of a fever on the Monday when he arrived, but improved over night and was ok on the day of the op. So, he was literally gowned up and at the point of going in when the consultant anaesthetist pulled the plug. So that was that. I think it was also because he still had some other virus’s showing up on the MPA swab which he’d been carrying for months and months, though funnily enough the MPA swab he had the day of the operation showed he was now clear of them (but the results take a few days to come through if that makes sense).
Funnily he’s been better since last Tuesday, though obviously they still can’t get blood out of him. Currently they’re going to try Brighton I think to see if they can slot him in. Because we’re just west of the east Sussex border, we come under Worthing and they can’t really perform this kind of operation.
So really in summary, his rash is better, though he picked up a new cold type thing from his sister, he seems to have coped ok. He’s still coldy, but not worryingly so. Really we’re just treading water and hoping that 1, he doesn’t pick up anything nasty which he can’t fight. 2, His Graft verses host disease starts to calm down and the rash starts to improve (which it seems to be). 3, Most importantly I think that the Leukaemia doesn’t come back.
My Twitter is currently playing me up, so waiting for that to come up again and i’ll post a picture so you can see the difference in him.
I managed 53 miles on my bike on Sunday, but had a bit of knee pain near the end which isn’t good.
Just got to try and keep it up I suppose. drunk loads of isotonic drinks and the headaches weren't quite so bad. Just need to lose more of the belly now really