My mum and brother in law have both had this, but the good news is that after both being seriously ill (like, weeks of being incredibly sensitive to light or the slightest noise, nausea, vertigo etc, - like being permanently drunk and hungover at the same time) for several weeks each, both got it under control with careful medication. Also for both, the medication is now rarely needed - after the initial attack, it seems only to be triggered by other factors.
It's an awful thing to have while you have it though. You have my sympathy, Drago. Hope it gets fixed soon.