Asthma

[albion]

I suppose I could too, at least for the exerting without warm up thing.
Thinking back, the problem was that my tests were completed before inflammation happened.

If I had a heart problem it was also seemed far too random. Being near death cold after climbing the Tyne Tunnel stairs thus having to abandon a ride likely hinted at one. It was always a morning thing, like the hangovers I would get when sober !

 

[jefmcg]

I'm been following this thread, because I am also a mild asthmatic - much milder than any one in this thread - and today i heard about this paper, and thought might be of interested to other sufferers.

http://www.jpsychores.com/article/S0022-3999(14)00252-9/abstract

Basically, asthmatics who are exposed to an odour they are told is asthmogenic (there's a new word for you) have a physical, inflammatory response to it; if they are told it's therapeutic, they don't.

I wonder if there is a corollary to suppress a reaction to genuine trigger?

 

[albion]

"Irritation and annoyance ratings were elevated in the asthmogenic group."

What it does not say is "Irritation and annoyance ratings were not elevated in the therapeutic group."
Just badly worded then?

Yet obviously one perceives increased risk when warned of risk. That is how scary music works in the movies.

 

[madpensioner]

I'm been following this thread, because I am also a mild asthmatic - much milder than any one in this thread - and today i heard about this paper, and thought might be of interested to other sufferers.

http://www.jpsychores.com/article/S0022-3999(14)00252-9/abstract

Basically, asthmatics who are exposed to an odour they are told is asthmogenic (there's a new word for you) have a physical, inflammatory response to it; if they are told it's therapeutic, they don't.

I wonder if there is a corollary to suppress a reaction to genuine trigger?

As i stated previously i too have got a very mild form of asthma - and that it was the practice nurse who found it - having found it she refered me to a specialist - and to cut a long story very short he stated that nobody really knows what causes asthma - I stated that i had packed up smoking 6 yrs ago having smoked for 50 yrs - his comment was " dont let anyone tell you that smoking causes asthma - it may agrivate - but it will not cause it " - so that was from the horses mouth - where do we go from here . I know this sounds stupid but i ran marathons for a number of years - followig that i walked 50 miles on my birth day every year up to 69 years of age on 20 fags a day - i packed up smoking at 69 and started cycling 4/5 thousand miles per annum - and developed asthma - as the specialist said - know one knows what causes asthma . May be what you have stated is the answer - who knows the answer ?

 

[byegad]

Second hand tobacco smoke brings on my Asthma. Since the ban on smoking in public access buildings my inhaler use has dropped to 25% of what it used to be. The old 'Poison' scent makes me tighten up very badly in seconds of exposure and Diesel fumes set me off too.

 

[madpensioner]

Second hand tobacco smoke brings on my Asthma. Since the ban on smoking in public access buildings my inhaler use has dropped to 25% of what it used to be. The old 'Poison' scent makes me tighten up very badly in seconds of exposure and Diesel fumes set me off too.

I think your Asthma is worse than mine - however Diesel fumes can do the same to me .

 

[SatNavSaysStraightOn]

back to the dr's this afternoon re: my asthma... having problems with one of my meds... fingers crossed I get someone helpful... it can be hit and miss and I can come over as knowing more about my condition than them (which is accurate on the whole given I managed & medicated myself whilst on the big tour...). Hate having to go to the dr's though because the waiting room is always full of ill people and I usually catch something I don't want and I go on holiday in less than 2 weeks time....

 

[albion]

.. however Diesel fumes can do the same to me .

See there are causes, it just happens the doctors do not know each personal case/cause.

The other thing to bear in mind is that 'asthma' is much a label. I've, rather unwittingly had allergic rhinitis my whole life, with that blending in with my asthma. It was never diagnosed because it got slotted in as being asthma and simply ignored/put up with.

BTW, is not your asthma caused by that extra exertion needed for cycling up hills or by the wind on your breathing channels?
I get a bit of both, with the hill thing near 100% alleviated by granny gearing.

 

[byegad]

No issues with breathing hard setting me off, but if I'm not clear already a hill will point up a problem I was unaware of.

That said these days I suffer far fewer attacks and am classified as 'Well controlled' by the Asthma nurse at my GP's. The demise of smoking has been the major reason why my breathing has improved. Anyone claiming that second hand tobacco smoke does not bring on an asthma attack is plain wrong, at least in my case.

 

[madpensioner]

See there are causes, it just happens the doctors do not know each personal case/cause.

The other thing to bear in mind is that 'asthma' is much a label. I've, rather unwittingly had allergic rhinitis my whole life, with that blending in with my asthma. It was never diagnosed because it got slotted in as being asthma and simply ignored/put up with.

BTW, is not your asthma caused by that extra exertion needed for cycling up hills or by the wind on your breathing channels?
I get a bit of both, with the hill thing near 100% alleviated by granny gearing.

I didnt say that Diesel fumes caused my Asthma - they just agrevate it .

 

[HeroesFitness]

Asthma is very serious but doing aerobic exercise (cycling, jogging, rowing etc) at gentle to medium bouts generally will help with it, if I recall David Beckham was or is asthmatic, so don't let it hold you back just be sensible and seek medical assistance and maybe get a GP referal for a personal trainer for a few sessions

 

[SatNavSaysStraightOn]

Success at last.... after more than 2 years of not sleeping at night following constant asthma attacks, I have finally had a couple of good nights sleep free from my issues....
I had been convinced it was one of my asthma meds that was causing the problem, but even my severe asthma consultant had said that that particular med did not cause those issues... I even have a sleep referral for a CPAP trial it has been that bad.

Well 2 weeks ago when my OH was away from home and I was so desperately tired from no sleep, I totally (and genuinely) forgot to take this med 2 nights in a row and slept better than I had for a long time. When my OH got home, and feeling slightly better and my normal routine restored, I realised my mistake and took the medication. Problems returned instantly. So I pulled out an old inhaler which is very close to its expiry (one that is an either or with this medication) and used that for a week. Then I started on the research.... the NHS website can be so very useful at times and almost immediately I found the problem. The medication I was being prescribed had 2 ingredients - the medication and a dairy product... So I did some more digging, found that the same med was available in another form which did not contain dairy and decided to talk with my GP... I started by apologising for going off and doing my own investigation, but I have tried repeatedly now to get someone to listen to me about these issues... my sleeping problems were being put down to the tracheomalacia and bronchiectasis I have been diagnosed with (hence the CPAP trail) and I wasn't convinced, not least of all because whilst I was off (trying to) cycle around the world, I didn't have these problems....

So having discussed it with my GP (who listened to me) and showed him the printed NHS pages I had taken with me, he gave me the choice between trying the alternative version of the med that had been causing the problems or going back to my old inhaler (which would need to be taken 4 doses 4 times a day compared to the new one which is 2 doses once a day). I chose the alternative because carrying 3 inhalers around all day is a real pain and also because of oral thrush issues, 2 doses verses 16 doses... Well last night was the first night on the new inhaler (but same drug) and no issues...

So after more than 2 years, and numerous medical experts looking at the 'problem', not a single one of them picked up on the fact that the medication I was prescribed was spraying a dairy product into the lungs of a severe asthmatic who is allergic to dairy products!

Now all I have to do is learn to sleep again!

 

[ColinJ]

Success at last.... after more than 2 years of not sleeping at night following constant asthma attacks, I have finally had a couple of good nights sleep free from my issues....
I had been convinced it was one of my asthma meds that was causing the problem, but even my severe asthma consultant had said that that particular med did not cause those issues... I even have a sleep referral for a CPAP trial it has been that bad.

Well 2 weeks ago when my OH was away from home and I was so desperately tired from no sleep, I totally (and genuinely) forgot to take this med 2 nights in a row and slept better than I had for a long time. When my OH got home, and feeling slightly better and my normal routine restored, I realised my mistake and took the medication. Problems returned instantly. So I pulled out an old inhaler which is very close to its expiry (one that is an either or with this medication) and used that for a week. Then I started on the research.... the NHS website can be so very useful at times and almost immediately I found the problem. The medication I was being prescribed had 2 ingredients - the medication and a dairy product... So I did some more digging, found that the same med was available in another form which did not contain dairy and decided to talk with my GP... I started by apologising for going off and doing my own investigation, but I have tried repeatedly now to get someone to listen to me about these issues... my sleeping problems were being put down to the tracheomalacia and bronchiectasis I have been diagnosed with (hence the CPAP trail) and I wasn't convinced, not least of all because whilst I was off (trying to) cycle around the world, I didn't have these problems....

So having discussed it with my GP (who listened to me) and showed him the printed NHS pages I had taken with me, he gave me the choice between trying the alternative version of the med that had been causing the problems or going back to my old inhaler (which would need to be taken 4 doses 4 times a day compared to the new one which is 2 doses once a day). I chose the alternative because carrying 3 inhalers around all day is a real pain and also because of oral thrush issues, 2 doses verses 16 doses... Well last night was the first night on the new inhaler (but same drug) and no issues...

So after more than 2 years, and numerous medical experts looking at the 'problem', not a single one of them picked up on the fact that the medication I was prescribed was spraying a dairy product into the lungs of a severe asthmatic who is allergic to dairy products!

Now all I have to do is learn to sleep again!

Well done, and enjoy your sleep!

I told my consultant about a couple of research results I had found that he had never heard of.

 

[SatNavSaysStraightOn]

Well done, and enjoy your sleep!

I told my consultant about a couple of research results I had found that he had never heard of.

I'll just be glad to be able to ditch the CPAP trail in November... that really was the last straw. Still have to get another apt with my severe asthma consultant and obviously on a month trial of the new version of the drug, but life generally seems much better not being in permanent anaphylactic shock! But my body has decided that is needs more sleep which is probably where I will head off to this afternoon instead of a bike ride. Time to listen to my body (given it has just gone as black as night outside and is about to rain heavily!)

 

[John the Canuck]

Success at last.... ...snip.......... the medication I was prescribed was spraying a dairy product into the lungs of a severe asthmatic who is allergic to dairy products!..............Now all I have to do is learn to sleep again!

very interesting.!

i use morning and night
Seretide 500 - Salmeterol/fluticasone propionate
- Salmeterol helps relax the air passages
- Fluticasone is a Steroid to reduce inflammation

Atrovent - Ipratropium bromide Inhalers
- which also relaxes the air passages

+ 1 Montelukast sodium tablet at night
- used to prevent wheezing, difficulty breathing, chest tightness, and coughing during exercise
- allergic rhinitis ( sneezing and stuffy, runny or itchy nose]
note: contains lactose

NOW - some weeks ago i ran out of Meds and my online renewal application was 'On Hold' by my local GP annual checkup needed i believe
anyway one thing and another i didn't make an appointment........
suddenly realized 2 weeks have passed - only meds being taken was Atrovent Inhaler 2xday

and I felt OK - even on my 12mile circuit every other day

but have had attacks of the 'sneezes''......

thanks to your notes above - I'll see if my meds can be decreased or changed due to the lactose.......
BTW i switched to goats milk years ago

john

take care ....sleep well.!......