My Prostate Cancer Journey and Why You Should Get Tested

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PK99

Legendary Member
Location
SW19
I am 67.

In November last year, a very good school friend died of Prostate Cancer aged 64 - he had been diagnosed in A&E in late 2019 with Stage 4 (Metastasized) Prostate Cancer.

A few days later his wife wrote a very brave article in the Telegraph describing Martin's journey and exhorting all men over 40 to have a PSA test.

So I did. On Friday 10 Feb.

On Monday 13th, my GP phoned and said the result was a little high and he was referring me on the NHS 2-Week Cancer Pathway.

On Sunday 19th Feb, I had and MRI at St George's, Tooting. On Tuesday 21st I met with a consultant who advised that the MRI had shown anomalies that strongly suggested Cancer and recommended I proceed to the next diagnostic stage - Trans perineal biopsy which could have been done 3 days later. But, as I was heading to Antarctica a couple of days later, we chose to delay this till after my return.

On Friday 24 March, I had a biopsy. On seeing the Procedure Plan, my wife remarked "Welcome to my world!" .... Arse in the air, feet in stirrups, farewell any form of dignity as an ultrasound probe was inserted in my back passage and local anesthetic and sharp instruments were applied in unmentionable areas.

On 6 April, I met with a Consultant Urology Surgeon. He asked why I had asked for the PSA. I explained about my friend and his wife. His reply was to the point and sobering: "She has just saved your life" I did have prostate cancer. It was significant. It was still within the prostate capsule but close to the edge. Watch and wait was not an option. I did have two options: Hormone therapy plus radiotherapy, which might be curative, or Radical Robotic Prostatectomy which would excise the prostate completely and the cancer with it.

On 14 April, I was called for my decision, I opted for the certainty of surgery.

On Thursday 11 May, I had the surgery. 6 holes in my belly! Two nights in the hospital and virtually no post-op pain.

On Monday 5 June, I met with the surgeon who reported that the Pathology analysis had confirmed a significant and extensive cancer within, but not extending beyond, the capsule.

Today, 4 July, the day after my 40th Wedding Anniversary, I met him again to receive the results of my post-op PSA test. Levels were "Undetectable" and I was discharged as Cancer Free.

Along the way, there have been post-op urine incontinence issues, but they were essentially resolved within 2 weeks of surgery. And there will be ongoing Erectile Dysfunction / Potency issues but lots of support in specialist clinics.

So Guys: Get Tested! Girls, tell your guys to get tested.
It is scary, and not all journeys will be as positive as mine, but if caught early the prospects of a complete cure are good and the journey to resolution short.


A couple of incidental points:
* My surgeon said that despite my having multiple co-morbidities (CML, Sjogren's syndrome, a long history of chest infections, and others) it was clear that my cycling fitness meant I was suitable for the surgery. During the op, my anesthetist remarked that my numbers were saying I was clearly very fit.

*During the Biopsy process, the consultant reported that a DRE test was "Normal", my surgeon later said that is not unusual and that PSA followed by MRI is a far better way to go. so guys do not rely on the Finger ask for a PSA.

Edit: I should have said. I was completely symptom free. AND had had DRE and PSA tests previously
 
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fossyant

Ride It Like You Stole It!
Location
South Manchester
I'm due in shortly due to meds, I get tested every year.
 

glasgowcyclist

Charming but somewhat feckless
Location
Scotland
I saw a public service announcements for this a couple of weeks ago on instagram (PSA for PSA?) so I followed the info links and made an appointment at my GP.

Blood was taken last Monday and for some reason the nurse said she was also testing for diabetes (no history in my family) and liver function. The results came back three days later: ‘all normal’.

@PK99 I’m glad to hear you caught yours in time 🍻.

You should write a nice thank you card to your friend’s wife.
 

Slick

Guru
I've got some ongoing issues, but did have a PSA test earlier this year, and all normal.

I do have some huge concerns for a very good friend of mine, who I saw on Saturday and couldn't believe how terrible he looked. He's the archetypal male who sticks his head in the sand at the mere mention of doctors, and my very real fear is, he's going to get some bad news. He promises me he is going to the doctors tomorrow, so I just hope he doesn't back out this time. I don't suppose I'll sleep much tonight, I can only guess how he's feeling.
 

Slick

Guru
I am 67.

In November last year, a very good school friend died of Prostate Cancer aged 64 - he had been diagnosed in A&E in late 2019 with Stage 4 (Metastasized) Prostate Cancer.

A few days later his wife wrote a very brave article in the Telegraph describing Martin's journey and exhorting all men over 40 to have a PSA test.

So I did. On Friday 10 Feb.

On Monday 13th, my GP phoned and said the result was a little high and he was referring me on the NHS 2-Week Cancer Pathway.

On Sunday 19th Feb, I had and MRI at St George's, Tooting. On Tuesday 21st I met with a consultant who advised that the MRI had shown anomalies that strongly suggested Cancer and recommended I proceed to the next diagnostic stage - Trans perineal biopsy which could have been done 3 days later. But, as I was heading to Antarctica a couple of days later, we chose to delay this till after my return.

On Friday 24 March, I had a biopsy. On seeing the Procedure Plan, my wife remarked "Welcome to my world!" .... Arse in the air, feet in stirrups, farewell any form of dignity as an ultrasound probe was inserted in my back passage and local anesthetic and sharp instruments were applied in unmentionable areas.

On 6 April, I met with a Consultant Urology Surgeon. He asked why I had asked for the PSA. I explained about my friend and his wife. His reply was to the point and sobering: "She has just saved your life" I did have prostate cancer. It was significant. It was still within the prostate capsule but close to the edge. Watch and wait was not an option. I did have two options: Hormone therapy plus radiotherapy, which might be curative, or Radical Robotic Prostatectomy which would excise the prostate completely and the cancer with it.

On 14 April, I was called for my decision, I opted for the certainty of surgery.

On Thursday 11 May, I had the surgery. 6 holes in my belly! Two nights in the hospital and virtually no post-op pain.

On Monday 5 June, I met with the surgeon who reported that the Pathology analysis had confirmed a significant and extensive cancer within, but not extending beyond, the capsule.

Today, 4 July, the day after my 40th Wedding Anniversary, I met him again to receive the results of my post-op PSA test. Levels were "Undetectable" and I was discharged as Cancer Free.

Along the way, there have been post-op urine incontinence issues, but they were essentially resolved within 2 weeks of surgery. And there will be ongoing Erectile Dysfunction / Potency issues but lots of support in specialist clinics.

So Guys: Get Tested! Girls, tell your guys to get tested.
It is scary, and not all journeys will be as positive as mine, but if caught early the prospects of a complete cure are good and the journey to resolution short.


A couple of incidental points:
* My surgeon said that despite my having multiple co-morbidities (CML, Sjogren's syndrome, a long history of chest infections, and others) it was clear that my cycling fitness meant I was suitable for the surgery. During the op, my anesthetist remarked that my numbers were saying I was clearly very fit.

*During the Biopsy process, the consultant reported that a DRE test was "Normal", my surgeon later said that is not unusual and that PSA followed by MRI is a far better way to go. so guys do not rely on the Finger ask for a PSA.

Should have said, well done. :thumbsup:
 

lazybloke

Priest of the cult of Chris Rea
Location
Leafy Surrey
Is it normal to have an MRI before biopsy?
That's not the order I recall for my family and friends who have gone through a similar radical prostatectomy journey.

Anything to improve the quality of diagnostics is a good thing.
 

Electric_Andy

Heavy Metal Fan
Location
Plymouth
Thanks for sharing. My dad and grandad had prostate cancer at 65 and 80 respectively. I'm 42 now so guess i should make an appointment, but I've had no symptoms. Dad had trouble peeing which is why he initially went in.
 
OP
OP
P

PK99

Legendary Member
Location
SW19
Is it normal to have an MRI before biopsy?
That's not the order I recall for my family and friends who have gone through a similar radical prostatectomy journey.

Anything to improve the quality of diagnostics is a good thing.

It is now.
PSA raised .... MRI .... Biopsy... is the standard diagnostic route. MRI is much more available and images are far better than even just a few years ago
 
OP
OP
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PK99

Legendary Member
Location
SW19
Thanks for sharing. My dad and grandad had prostate cancer at 65 and 80 respectively. I'm 42 now so guess i should make an appointment, but I've had no symptoms. Dad had trouble peeing which is why he initially went in.

Neither I nor 2 friends who have been down the same RRP route had any symptoms before PSA testing.
 

rogerzilla

Legendary Member
I asked for a test at the GP but they weren't keen. The problem is that the test gives a lot of false positives and either (a) they don't want to worry people or (b) they know the NHS can't cope with the next stage of investigations.
 
OP
OP
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PK99

Legendary Member
Location
SW19
I asked for a test at the GP but they weren't keen. The problem is that the test gives a lot of false positives and either (a) they don't want to worry people or (b) they know the NHS can't cope with the next stage of investigations.

The next stage is an MRI. I had mine on a Sunday ie low usage period.

Tell the GP they are talking nonsense. And ask would they refuse a smear or mammogram for a worried female.
 

Slick

Guru
I asked for a test at the GP but they weren't keen. The problem is that the test gives a lot of false positives and either (a) they don't want to worry people or (b) they know the NHS can't cope with the next stage of investigations.

From my understanding, 3 out of 4 men with a higher reading won't have cancer, a higher number is just an indication that further investigation may be required, but there are a number of reasons for a higher reading.

You are either very young, or your GP feels you are at zero risk, for some other reason.
 

Beebo

Firm and Fruity
Location
Hexleybeef
Thanks for sharing. My dad and grandad had prostate cancer at 65 and 80 respectively. I'm 42 now so guess i should make an appointment, but I've had no symptoms. Dad had trouble peeing which is why he initially went in.

My dad has it and it can be inherited.
As I’m over 45 I was told to get a test. My brother is 44 so wasn’t offered a blood test. So I think you have to be over 45 with a family history.
 
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